My son started regressing about one year ago (maybe a little before if I think about some small things I was seeing but didn’t realize were DSRD related). He was officially diagnosed on February 7th of this year. Dr. Anadani (his neuroimmunologist at OU Medical in Oklahoma City) sent me this on that day: “I…
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Some Thoughts About DSRD
What are we dealing with exactly with Down Syndrome Regression Disorder (DSRD)? It is still a very unmapped diagnosis but we are on the cutting edge again with Osiyyah. Some with DSRD sit and stare.Some wander aimlessly.Some get stuck in a routine.Some lose the ability to talk.Some become very agitated and angry.Some have extreme episodes…
An Introduction
Welcome to our little public journal – a place where my mom, Kim Fish, and I will share the research we find and links as a community resource for a journey we never expected to find ourselves on. Please read to the end, as this summary ended up longer than I intended. But, how do…