July 2, 2025 – Getting Through the Stick We arrived with 15 minutes to spare before his appointment and made our way into the new-to-us infusion center. I met Nate, the scheduling nurse, who had been so helpful on the phone getting our appointments all on the calendar. Within a few minutes, we were escorted…
Category: IVIG
July 2, 2025 – The Day He Got in the Car by Himself
July 2, 2025 – The Day He Got in the Car by Himself The morning of the 2nd, I woke up at about 6:20am to get ready to go. He was awake on the other couch and asked me what I was doing. I told him I was getting ready to go since we had…
Another Case of anti-NMDA Receptor Encephalitis
In my last post, I mentioned the book by Susannah Cahalan called Brain on Fire. I found an interesting article about another woman named Kassidy Anderson. She was eventually diagnosed with the same problem that Susannah had – anti-NMDA receptor encephalitis, a rare autoimmune disease that attacks the brain. It’s a pretty good read: https://www.uab.edu/news/health-medicine/brain-on-fire-film-helps-patient-receive-diagnosis#:~:text=What%20Vaphiades%20heard%20when%20he,NMDA%20receptors%20in%20the%20brain.
What is IVIG?
Here I sit at the OU Infusion Center in Oklahoma City, OK watching as my son, Osiyyah, is hooked up to an IV. We are on day 2 of treatment #4 of IVIG (once a month treatments of Intravenous Immunoglobulin). This unique approach has recently been being used to treat individuals who suffer with Down…